Saturday, August 16, 2008

He Passed!!!


On Tuesday Dax had his Follow up swallow study and PASSED!!!! SO he no longer has to have his feeding tube down his nose. He gets very sleepy when he eats so it takes a while to feed him but what do you expect when this is your first go at eating in your three and a half weeks of life?!? I think he is doing so well though for all that he has been through and learn. Brody is such sweet big brother with him. The other night we were just done eating dinner when Dax started to cry in the living room so my mom got up to go get him and Brody Took off running Pushing all of us out of the way so that he could help his brother. He is so cute and gentle with him and loves to help in every way he can.

Saturday, August 9, 2008

We are home...and LOVING it!!

After 15 days in the hospital we are home! I have to admit that in 18 months I forgot how much attention is required for a newborn, and to add a 19 month old also! But I wouldn't have it any other way I love my 2 sweet babies! Dax is doing well and growing each day. Tuesday we will go back to Primarys to have a follow up swallow study to see if it is okay to remove the NJ feeding tube and let him nurse normally (keep your fingers crossed!). I will let you know how his tests go and soon as I know the results for now here are a few pictures.


Just a close up on his sweet face!


This was they first time he had been dressed since he was born. We were just waiting to be discharged.


Brody loves his little brother and wants to be right by him every minute. They both fell asleep in grandma's bed and you can see by the picture that Brody had to be right by his side to touch his head if Dax cried.

Wednesday, August 6, 2008

Home or bust.....

WE ARE GOING HOME! After all these tests we finally found the problem, Dax has severe sleep Apnea at night which is easily fixed by a small amount of oxygen. The test was done last night for 12 hours and it found that he is dropping his oxygen 83 times an hour and dropping 10 times they consider bad so they think that for the most part he just needs to grow and should be healed by his due date of August 15Th. For now we will go home with oxygen and his NJ tube for his feedings for a little while. We will do another sleep study in a few weeks to check his progress. I will update with pictures tomorrow! AGAIN thanks for all you love and support and keeping us in your prayers.

Saturday, August 2, 2008

Daxie day 10

Well we are still up at primarys for now. We have had just about every test possible done at this point including a EKG, Bronchial scope, head ultrasound, upper GI, echo and coming soon..... A sleep test! It has been so frustrating because each day is something new that they need to do tests on. We originally came up here for stridor and now they are on to sleep apnea. The one thing that I see good in all this is that Once we leave here we will know that there is NOTHING wrong with him. Jon and I along with my parents would like to thank everyone for your calls, prayers and support it has really meant alot to us. As for me I have a section of my wound that never closed so my wonderful mom packs this open wound for me 2 times a day. If its not one thing its another. So there you have it for now! I'll try to update you more often when I get a chance.

Tuesday, July 29, 2008

Daxie Update

Yesterday Dax was "life flighted" to primary children's. That's what they call it because the life flight team comes in and transports him in a intensive care unit ambulance.


They moved him up there because they want a ear nose and throat specialist to look at his breathing and what they call stridor. He is eating all his meals by mouth and doing very well. He may have to come home on a little oxygen because he drops into the 70's every once in a while when he should be 95 or higher. When the team came to pick him up This is the bed I see to take him in!

I think that we were all a little worried that he wasn't going to fit!

But he did ( barely!)

As of yesterday they said he should be discharged with in a few days so I'm hoping by the weekend.

Saturday, July 26, 2008

A great big FRANKS to James!!

I would just like to thank my WONDERFUL sister Jamie for taking care of me last night!! She came with a bag of goodies including treats, a book stuff for Jon and all the stuff for a pedicure...

And a Manicure!

It was so nice to be pampered in the hospital and have someone massage my legs and feet then paint them just like I went to a salon! It really helped me relax and feel good. I was so stressed with having Dax in the NICU and not having my milk come in to give him those antibodies he really needs right now. Thanks to James helping me relax soon after she left the dairy opened!!! Thanks again James I really appreciate it and love you so much!

Also thank you to all that have called and commented and kept us in your thoughts and prayers. It means alot to us and we really appreciate you.

Friday, July 25, 2008

Dax 3 days old

Dax is doing alot better today. He is still having some trouble breathing when he gets upset and stops breathing for a short time. His coloring has gone a little yellow so he is on the special lights to help clear it up. He is still being fed through the tube in his nose but the doctor said that they would try to bottle feed him since we are not allowed to hold him with the central line in his belly there for I can not attempt to breast feed him. Here are a few pictures of my Sweet obese preemie!!!


His nurse Roxanne made him this name card last night. Look at his big tiny feet.


I love when I get to see his cute eyes open.


Dax really loves his binkies, so he sticks his fingers in the hole!


He gets to wear these funny foam glasses while under the lights!