Dax's sleep study

As many of you read in some of my previous blogs I mention that dax had severe sleep apnea and was dropping 83 times a hour. We did a follow up study with his oxygen on and no feeding tube to see if he had improved in the 2 weeks he was home. Here is what his test looked like while he was in the hospital.... He should have a pretty solid line at the 100 mark at the top and as you can see he couldnt stay there at all.


Here is the test he took a few nights ago....



Such a HUGE difference you would think that the chart was upside down but its not he just had a great inprovement which I had expected because the doctors had said that the apnea could be beccuse the tube wasw irritating his throat. I really think this shows that! When the doctor read the study he was so shocked because oxygen doesnt fix the problem like that. I am just greatful that he is doing so well and I hope that soon he can be off the oxygen completely once we do one more study on plain old room air.

Thanks for the dinner! Can I borrow your broom?

So our ward decided that they would wait to bring our family dinner until after Dax came home. We were very grateful and the food was great! One was so great I got so excited to take this dishes back and thank them . . . . .WELL as I got out of the car in their driveway the glass lid slid off the dish and SHATTERS all over their driveway.OH MY GOSH! Did I feel like an idiot! So my father and I walk up to the door and when they answered we just smiled and i simply say," Thanks for the dinner can I borrow your broom?" He looks at us confusingly and I can't help but giggle while I explain what just happened!

Here is some of the pile we swept up!

I know this picture isn't the best but the glass flew all the way to the street in big chunks so my dad was picking them up so they didn't also get a flat tire to go along with their broken dish!! As I sit here and write this blog I cant stop laughing about how stupid I felt. So I hope you all can laugh along as I go to Target to buy a new dish!

He Passed!!!

On Tuesday Dax had his Follow up swallow study and PASSED!!!! SO he no longer has to have his feeding tube down his nose. He gets very sleepy when he eats so it takes a while to feed him but what do you expect when this is your first go at eating in your three and a half weeks of life?!? I think he is doing so well though for all that he has been through and learn. Brody is such sweet big brother with him. The other night we were just done eating dinner when Dax started to cry in the living room so my mom got up to go get him and Brody Took off running Pushing all of us out of the way so that he could help his brother. He is so cute and gentle with him and loves to help in every way he can.

We are home...and LOVING it!!

After 15 days in the hospital we are home! I have to admit that in 18 months I forgot how much attention is required for a newborn, and to add a 19 month old also! But I wouldn't have it any other way I love my 2 sweet babies! Dax is doing well and growing each day. Tuesday we will go back to Primarys to have a follow up swallow study to see if it is okay to remove the NJ feeding tube and let him nurse normally (keep your fingers crossed!). I will let you know how his tests go and soon as I know the results for now here are a few pictures.


Just a close up on his sweet face!


This was they first time he had been dressed since he was born. We were just waiting to be discharged.


Brody loves his little brother and wants to be right by him every minute. They both fell asleep in grandma's bed and you can see by the picture that Brody had to be right by his side to touch his head if Dax cried.

Home or bust.....

WE ARE GOING HOME! After all these tests we finally found the problem, Dax has severe sleep Apnea at night which is easily fixed by a small amount of oxygen. The test was done last night for 12 hours and it found that he is dropping his oxygen 83 times an hour and dropping 10 times they consider bad so they think that for the most part he just needs to grow and should be healed by his due date of August 15Th. For now we will go home with oxygen and his NJ tube for his feedings for a little while. We will do another sleep study in a few weeks to check his progress. I will update with pictures tomorrow! AGAIN thanks for all you love and support and keeping us in your prayers.

Daxie day 10

Well we are still up at primarys for now. We have had just about every test possible done at this point including a EKG, Bronchial scope, head ultrasound, upper GI, echo and coming soon..... A sleep test! It has been so frustrating because each day is something new that they need to do tests on. We originally came up here for stridor and now they are on to sleep apnea. The one thing that I see good in all this is that Once we leave here we will know that there is NOTHING wrong with him. Jon and I along with my parents would like to thank everyone for your calls, prayers and support it has really meant alot to us. As for me I have a section of my wound that never closed so my wonderful mom packs this open wound for me 2 times a day. If its not one thing its another. So there you have it for now! I'll try to update you more often when I get a chance.